Well another chapter starts. We finally got word about a week and a half ago that the medicine that we have been fighting for for Talan has been accepted by the Insurance. This is a miracle in itself!!! YAY!!!!! It has been a long time coming! This medicine along with lots of faith and prayers is the only hope we have. It may not cure him but it will surely help. We will always go for a cure though! Many prayers have been said and lots of FAITH is what its all about. Talan sure is a fighter, and a strong soul!
This medicine is called Rituxin. Some of our friends out there have had this, there are side effects Im not going to lie, but doesnt everything seem to have side effects? Of course we know that Talans body is different and he reacts to about all medicine, mostly in a negative way. This is why we would ask all of you if you would please keep Tal in your prayers. We hope that his body will receive this medicine and take it to its full advantage. It is a 6 hour infusion, he will be at the U of U all day tomorrow. This will be his first infusion and in two weeks he will have one more. He will then wait 6 months to see if it has worked and if he will need more. This is a wait and see what it will do for him, help the symptoms, slow the disease process down, or put in remission???? All would be great.
Talan is such a special spirit and we as his parents have no idea why he has to suffer at such a young age? It is very hard to watch and be helpless. But he has been an example of courage, faith and endurance! We believe that this will the first miracle that will lead to the next! He has not been able to serve at the Temple for awhile, he fell at the first of Oct. and hurt his back again. We have been trying to nurse it back since, which entailed sticking 6 needles in his back and injecting medicine. He also has falls when his leg gives out on him, which has happened several times just this past week. Talans motto is NEVER GIVE UP!!! He is not giving up, but he is very nervous about tomorrow. I know his Dad will take very good care of him, I cannot go because Im a little under the weather and the Doc said I could not be around him or the people down there. Please also keep Stan in your prayers as he is a little nervous himself being alone with him. This is such a special bonding time together. I want to thank you all for your support, thoughts, calls, texts, and prayers in our behalf! May God bless all of us going through trials at this time, as we know we are not alone! Love you all!
I will give updates as I know.....If any of you have Tals # it would be great if you could shoot him a text to say hey!
